I’m disabled. I have Ehlers Danlos Syndrome, and am on disability because of it. I know that some people with Ehlers Danlos Syndrome are also disabled and have trouble getting on disability, partially because EDS is so unheard of and partially because EDS often presents in a milder form that does not affect a person’s lifestyle to the point that they can’t work or perform everyday tasks.
I wanted to offer some advice to those that are or want to apply for disability, because I see a lot of people having trouble with it.
1. Get your doctor to write a letter explaining that you are disabled and cannot work. A lot of people just straight up apply, but from what I understand, a doctor’s note helps.
2. You will very likely be turned down the first time you apply. Appeal. You’ll probably be turned down again. Appeal. Remember, they want you to give up.
3. Do not let your appeal period expire.
4. You will probably need to hire a lawyer and have a judge look over your case. If your case is anything like mine, the judge will be confused that your case had to be taken so far, and approve you right away. The hearing was by far the least upsetting part of the entire ordeal.
5. Applying for disability can be incredibly stressful, but remember that approval is possible. It will probably take a long time, but don’t give up.
6. Remember to take care of yourself.
Also, it is frighteningly similar to trying to get Services Funding for Josh. And his disability is far more obvious (severe autism).